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Table 1 Study characteristics of included peer-reviewed articles (n = 55), divided by the five groups identified based on their use of the ‘continuity of care’ concept

From: How have researchers defined and used the concept of ‘continuity of care’ for chronic conditions in the context of resource-constrained settings? A scoping review of existing literature and a proposed conceptual framework

First author, year

Study type

Condition

Locationa

Main focus of the article

Group 1: Reflecting a change in stages or systems of care

Robles, 2004 [28]

Review

Chronic diseases

Americas

A public health framework for chronic disease prevention and control

Mayige,2011 [25]

Review

NCDs

Tanzania

NCD services

Pakdeeprom, 2012 [30]

Cross-sectional survey

Chronic diseases

Thailand

Transition from paediatric to adult care system for patients with chronic illnesses

Ichiho, 2013 [23]

Review and assessment

NCDs

Federated States of Micronesia

Systems perspective on NCDs, including diabetes

Armstrong, 2014 [35]

Case study

Tuberculosis

India

Treating drug-resistant tuberculosis in a low-intensity chronic conflict

McGuire, 2014 [27]

Review

Cardiovascular diseases

Low-resource settings

Medical devices and diagnostics for cardiovascular diseases

Weigl, 2014 [26]

Review

NCDs and chronic diseases

Low-resource settings

Point-of-care diagnostics and their impact on care in the age of the NCD and chronic disease epidemic

Doocy, 2015 [33]

Cross-sectional survey

Chronic diseases

Jordan

Prevalence and care-seeking for chronic diseases among Syrian refugees

Knaul, 2015 [24]

Review

Breast cancer

Mexico

Example of breast cancer care to illustrate effective universal health coverage along the chronic disease continuum and across health systems functions

Lee, 2015 [32]

Commentary

HIV

LMICs

Transition from paediatric to adolescent to adult healthcare settings for young HIV patients

Rabkin, 2016 [34]

Review

HIV/chronic diseases

LMICs

Lessons from HIV to address chronic diseases in protracted emergencies

Silverman-Retana, 2016 [29]

Cross-sectional survey

Diabetes mellitus/ hypertension

Mexico

Exploring transition of diabetes and hypertension care among male prisoners

Nobrega, 2017 [31]

Qualitative study

Chronic diseases

Brazil

Evaluating continuity of care for children and adolescents with chronic diseases in the healthcare network

Group 2: Mentioning continuity or lack of continuity without a detailed definition

Greenberg, 2002 [53]

Commentary

Chronic diseases

LMICs

A new perspective on global health assistance given health transitions and rise of chronic illnesses

Polanczyk, 2009 [54]

Review

Coronary artery disease

Brazil

Contemporary management and future perspectives for coronary artery disease

Suwanno, 2009 [50]

Cross-sectional survey

Heart failure

Thailand

Predicting health status of a patient with heart failure

Ramli, 2010 [36]

Review

Chronic heart failure

Malaysia

Management of chronic heart failure in primary care

van Olmen, 2011 [55]

Commentary

Chronic diseases

LICs

Self-management facilitated by expert patient networks and smartphone technology

Lund, 2012 [51]

Review

Mental health

South Africa

Mental health services

Bhojani, 2013 [37]

Qualitative in-depth interviews

Diabetes mellitus

India

Patients perspective on managing diabetes care

Dasgupta, 2014 [52]

Commentary

Chronic malnutrition

India

Examining the burden of severe malnutrition (acute and chronic) and whether programmatic responses are consistent with epidemiologic realities

Ravaghi, 2014 [38]

Qualitative SSIs

Diabetes mellitus

Iran

Provider’s perspective on specialised care programme for diabetes

Atwine, 2015 [47]

Qualitative FGDs

Diabetes mellitus

Uganda

Health-seeking behaviour and use of traditional medicine among persons with type 2 diabetes

Hussein, 2015 [39]

Review

Diabetes mellitus

Malaysia

Status of diabetes care and management

Mahomed, 2015 [49]

Quasi-experimental study

Chronic diseases

South Africa

A multifaceted intervention to improve the quality of nurse clinical documentation for chronic patients at primary care clinics

Maimela, 2015 [40]

Qualitative study

Chronic diseases

South Africa

Perceptions and perspectives of patients and healthcare providers on chronic disease management

Malan, 2015a [41]

Qualitative interviews and FGDs

NCDs

South Africa

A situational analysis of training for behaviour change counselling for primary care providers

Malan, 2015b [42]

Qualitative study

NCDs

South Africa

Experiences of primary care providers after a training programme to offer brief behaviour change counselling on risk factors for NCDs

Puspitasari, 2015 [43]

Qualitative in-depth SSIs

NCDs

Indonesia

Challenges in the management of chronic NCDs by community pharmacists

Sellappans, 2015 [48]

Qualitative FGDs

Chronic diseases

Malaysia

Challenges faced by primary care physicians in a teaching hospital when prescribing for patients with chronic diseases

Wang, 2015 [44]

Household survey

Chronic NCDs

Malawi

Health-seeking behaviour and the related household out-of-pocket expenditure for chronic NCDs

Khodaveisi, 2017 [45]

Randomised clinical trial

Multiple sclerosis

Iran

Effect of continuous care on the lifestyle of patients with multiple sclerosis

Pelcastre-Villafuerte, 2017 [46]

Ethnographical review

Diseases among the elderly

Mexico

A comprehensive healthcare model, interculturally appropriate, designed to meet the needs of indigenous older adults

Group 3: Researching continuity of care in HIV/AIDS programmes and scaling them up to support NCD management

Rabkin, 2011a [61]

Commentary

HIV/NCDs

LMICs

Leveraging HIV programmes to support NCD services

Rabkin, 2011b [62]

Commentary

HIV/NCDs

LMICs

Leveraging HIV programmes to support NCD services

Rabkin, 2012a [64]

Commentary

HIV/NCDs

LICs

Leveraging HIV programmes to support NCD services

Rabkin, 2012b [63]

Assessments and pilot intervention

HIV/diabetes mellitus

Ethiopia and Swaziland

Leveraging HIV programmes to support diabetes services

Fujita, 2015 [58]

Collaborative case study

HIV

6 Asia and Pacific countries

HIV service delivery model

Mkwinda, 2016 [56]

Qualitative design

HIV

Malawi

Exploring the needs of people living with HIV concerning care received from primary caregivers and palliative care nurses

Panditrao, 2015 [60]

Cross-sectional survey

HIV

India

Barriers to continued care among HIV-infected women who were previously enrolled in a private sector preventing mother-to-child transmission programme

Kruk, 2016 [59]

Discrete choice experiment

HIV

Ethiopia and Mozambique

Identifying healthcare characteristics preferred by HIV-infected women to promote treatment for a lifetime

Ahonkhai, 2017 [57]

Cross-sectional survey

HIV

Nigeria

Patient-centred medical home to provide HIV care

Group 4: Researching continuity of care in NCD management

Arevian, 2005 [65]

Case study

Diabetes mellitus

Lebanon

Collaborative practice model delivering care for diabetes mellitus patients

Wei, 2008a [67]

Case study

Diabetes mellitus

China

Diabetes management programme and association of continuity of care with clinical outcomes

Hanafi, 2015 [68]

Retrospective cohort study

Hypertension

Malaysia

Impact of personal continuity of care on blood pressure control in a university-based primary care practice

Shi, 2015a [73]

Case-control study

Hypertension /diabetes

China

Impact of an integrated care delivery intervention on healthcare seeking and outcomes for chronically ill patients (i.e. with hypertension or diabetes)

Shi, 2015b [71]

Case-comparison study

Hypertension /diabetes

China

Examining which of the dominant primary care delivery models (i.e. public community health centres model, ‘gate-keeper’ CHC model or hospital-owned CHC model) was most effective in enhancing access to and quality of care for patients with chronic diseases (i.e. with hypertension or diabetes)

Tang, 2015 [66]

Study design

Hypertension

China

Study design of a clustered randomised controlled trial to build and evaluate an integrated healthcare system for chronic patients

Wei, 2015 [72]

Multistage stratified random survey

Chronic diseases

China

Changes in perspectives of patients on quality of primary care following the introduction of health system reforms

Mwangome, 2016 [75]

Qualitative in-depth interview

HIV/diabetes mellitus

Tanzania

Perceptions, experiences and practice of care for HIV and diabetes from the perspective of patients and family caregivers

Ye, 2016 [70]

Cohort study

Hypertension

China

Effect of continuity of care on health-related quality of life in adult patients with hypertension

Mwangome, 2017 [74]

Qualitative study

Diabetes mellitus

Tanzania

Perception of health providers on diabetes care provision

Zhang, 2017 [69]

Clustered randomised controlled trial

Hypertension

China

Effects of integrated chronic care models on hypertension outcomes and spending

Group 5: Measuring continuity of care with validated questionnaires

Wei, 2008b [76]

Cross-sectional survey

Diabetes mellitus

China

Continuity of care in a community diabetes programme

Vargas, 2017 [77]

Cross-sectional survey

Chronic diseases

Columbia and Brazil

Patient perceptions of continuity of healthcare and associated factors

  1. CHC community health center, FGDs focus group discussions, LICs low-income countries, LMICs low- and middle-income countries, NCDs non-communicable diseases, SSIs semi-structured interviews
  2. aLocation could be: a country or a region or a setting