Table 1 Included papers (n = 45)

Country focus

∙ n = 14, United Kingdom

∙ n = 4, United Kingdom

∙ n = 7, United States

∙ n = 4, United States

∙ n = 3, Australia

∙ n = 3, Canada

∙ n = 4, European Union

∙ n = 2, Australia

∙ n = 3, Global

∙ n = 1, Canada

Research design

∙ n = 14, Empirical (surveys, qualitative interviews)

∙ Not available

∙ n = 18, Commentary (opinion piece or description)

Organisational focus or source

∙ n = 12 About funding agencies or programmes such as national funding bodies, major medical charities or specific funding programmes

∙ n = 10, National funding bodies that support a wide range of health and medical research (discovery, epidemiology, population health, clinical, health services research)

∙ n = 3 About academic organisations such as universities or research hospitals

∙ n = 3, Organisations that support public engagement for a wide range of health research

∙ n = 6 About organisations that represent or support the public, some of which also commission or raise funds for research or produce research

∙ n = 11 About multiple research organisations, networks or systems

Publication year

∙ n = 15, 2000–2009

∙ n = 1, 2000–2009

∙ n = 17, 2010–2017

∙ n = 12, 2010–2017